7:04am – Text Message
“Good morning mom and dad!
I had a great night with very little to report!
I weaned my O2 as low as 32%, I pooped 2 times, I played peek a boo with my nurse as you can see in my picture. I don’t know what all these gas numbers mean that people keep talking about but, this morning they turned my vent pressure settings down by two points, so I guess you could say I was a good boy overnight!
Nurse Kelly thought I was such a good boy that she let PT come and evaluate me and I did pretty darn good they said!
I’ve been tolerating my feeds all night and my belly stayed rounded but nice and soft with good bowel sounds!
Can’t wait to see you today! Love you lots”
Xoxo
Asher 😘💙
7:33am – Thoughts
We are thankful for everything that our Lord has brought us through!! But it seems to be a natural inclination to take our foot off the gas pedal of worship, prayer and focus when we’re not in trouble…
At least thats the feeling for me…
Christ is not a “spare tire” that we pull out of the trunk when we need to recover from a “flat”…
I personally, have done this far too often…
Just like a donut on a car looks out of place, a believer who is only Christ centered when “life happens” looks weird…
Through this journey, I have been convicted of this very scenario…
Its a double standard, because I have zero tolerance for lukewarm people, but yet I expect God to deliver on my lukewarm-ness…
Even though I strongly disagree with many folks, I have the utmost respect for them when they’re consistent…
My goal for My household: for Monica, Aiden & Asher, is to be Christ centered consistently. I cannot be content with my inconsistency. I must be the example…
Especially since I’ve seen God move when it comes to Asher. Answers to prayers that we didn’t have the foresight to pray. We’ve watched hurdles end up being diversions to miracles…
I know this blog gives many details, but there’s so many things that I haven’t mentioned that probably need to be added to the list of things we’ve witnessed God do…
I’ve always prayed selfishly…
This time has been different:
God, your will be done.
No matter our decisions, Asher’s story has already been written.
Let him go through everything under the sun, but preserve him.
Your will be done, not ours.
There’s far too much evidence for the existence of God, the reliability of scripture, etc. to the point that I truly believe it takes FAR MORE FAITH to be an atheist…
But the one thing missing from my “knowledge” was a heart connection. Asher’s journey is more proof that God is real, He has real power, and He loves us. It’s as if my heart is being discovered for the first time: loving God on an emotional level…
Thank you for praying with us and praying for us!
11:17am – Hospital: Dr Update
Asher’s sodium if really low right now. Dr Sahni said it’s due to either the brain bleed he had, which is causing water retention OR his cortisol levels are low…
They’ll do some tests today to confirm. Either way, the solution is simple…
His next head ultrasound is 8/11…
Weight is 920g, head circumference is 23.5cm (same size since 8/6)…
He does need a blood transfusion today so they’ll be adding a peripheral line this afternoon. Reason: his hemoglobin has become low again…
They’ve upped his feeds back to 4mL and they’ll begin the 22kcal fortification this afternoon after the transfusion window…
Outside of that, he’s doing great!!
4 replies to "Day 37 (29/6)"
Atta boy, Asher!
Heart to Heart with our loving Father. He is always there for us whenever we cry out. He knows we are imperfect, but loves us as his children unconditionally…Always willing to forgive. Asher’s story is a testimony to the true love our God has for us and the mercy he shows us. There have been so many people praying for Asher’s healing and our loving Father is doing just that. Miracles and blessings constantly being bestowed upon Asher by our loving God. Look at this precious, beautiful baby boy!! Thank you for sharing Asher’s journey with all of us. Love you!!
Oh my goodness!! Asher you make your GG so very happy and proud. What an awesome God we serve. I love you baby boy.
“O Lord, you have searched me and known me! You know when I sit down and when I rise up; you discern my thoughts from afar. You search out my path and my lying down and are acquainted with all my ways. Even before a word is on my tongue, behold, O Lord, you know it altogether. You hem me in, behind and before, and lay your hand upon me. Such knowledge is too wonderful for me; it is high; I cannot attain it. Where shall I go from your Spirit? Or where shall I flee from your presence? If I ascend to heaven, you are there! If I make my bed in Sheol, you are there! If I take the wings of the morning and dwell in the uttermost parts of the sea, even there your hand shall lead me, and your right hand shall hold me. If I say, “Surely the darkness shall cover me, and the light about me be night,” even the darkness is not dark to you; the night is bright as the day, for darkness is as light with you.”
Psalm 139:1-12 ESV